Lyme Blog

After this 4th day of tears, I posted to www.lyment.org to see if others had this type of Herx. Others on cyst busters (Flagyl or Tindamax) had similar experiences.

Okay, new stuff to protocol:10 mushroom combo to boost immune system (cordyceps, reishi, shitake, maitake, etc.) ....as well DHEA, it B6 & Vit B5 for adrenals. I do not want to take Cortef. The LLMD is recommending 5mg three times a day. I will have to think about that one. I think I would rather go back to stinging with bees.

Detoxing is high on my list of priorities these days. I take sarsaparilla, engystol and beta-sitosterol as recommended by my LLMD.

I also juice every other day (cilantro/ginger/ spinach/carrot). I take charcoal and do coffee enemas a few times a week.
PHEW.

Lyme Disease provides me with a glass wall to my core beliefs. I can see them clearly but I cannot touch them or alter them...that has been the crux of my pain.

Today, there is less fear after crying for the past two days and then also this morning as I was preparing my morning supplements.

I think my right ankle being sore is a herx and there is a tightness/ minor irritation around my hips and in the groin area.

No herxing today except for that emotion called fear. I remember that I am due for my period so this fear is not Lyme produced but hormone produced perhaps.

Added the Marrow Plus today. Managing these supplements and med.s and their times is overwhelming. Should I type out what I am taking? I am not up for it right now.

I spoke with my LLMD this AM. My CD57 reading is 38. It was 40 in March 2006. He recommends using Marrow Plus by Health Concerns to boost white blood cells.. and those Natural Killer cells that fight off viruses....chemo patients use it.

Negative on my Igenex for Babesia and Bartonella. Looks like my thyroid is low and will start Armour thyroid...oh the bliss. I also have to look into Reishi and Cordycep mushrooms - a supplement that can boost my immune system.

At first, I was not dicouraged but right now, I feel overwhelmed.

Stayed home alone all day today. Felt good. No places to be or people to see. I realize how stressed I get at having to be places on time. It is overwhelming and anxiety provoking EVEN if it is a simple dinner date.

My emotions, anxiety and fear levels are at an equilibrium. It is great. I listened to Bob Thurman's podcasts on Buddhism, #9 and #10, on self worth and renunciation. WOW!

This week I will take 250 mg of the Tindamax in the AM and 500 mg in the PM. Still easing into it because I do not want to tip myself over the edge with Herxing.

Stayed home alone all day today. Felt good. No places to be or people to see. I realize how stressed I get at having to be places on time. It is overwhelming and anxiety provoking EVEN if it is a simple dinner date.

My emotions, anxiety and fear levels are at an equilibrium. It is great. I listened to Bob Thurman's podcasts on Buddhism, #9 and #10, on self worth and renunciation. WOW!

This week I will take 250 mg of the Tindamax in the AM and 500 mg in the PM. Still easing into it because I do not want to tip myself over the edge with Herxing.

After 1st week of Tindamax, lots of herxing. My lower back is burning. I am anxious but I am handling life. I have had silly life set-backs...wireless access dying; alternator dying on auto but I am handling it all rather well.

I am not a weepy basket case, which is what I could have been.
This is me right now.

Two steps forward and three steps back...it is a dance with patience. Wow I felt great and today, wow, I must take it slow.

I started the Tindamax this week. My left hip is numb and my right hand stiff. Instead of the 500 mg.s twice a day that I was prescribed, I am moving into it more slowly. I am taking 250 mg.s twice a day, thanks to the lymenet.org discussion groups. Most people recommend easing into it. There is no need to Herx out like that.

I woke up with my left back hip numb. It was a Lyme episode from March 2005.

I contemplated nothing. I did nothing except look out my window at these trees. This is my life now and I thank Lyme for the indulgence. I started the Tindamax last night.

Here I am. Breathe in. Breathe out. The plateau. Fear and futility are here. Say hello.

Just trying to up my detoxing capabilities. My MD has ordered me some Beta-Sitosterol Fillig the prescription for tinidazole (Tindmax) has proved to be challenging. All in its own time.

I have reached a plateau and I must let it go at some point. I saw my LLMD this week.

I left his office with a barrage of tests. I am sending blood to IGenex again for possible coinfection of Babesia or Bartonella. We are also going to check on the status of my adrenals and thyroid and see if they are in decent shape. It has been more than one year since I had them tested.

I am also going to do a CD-57. I believe my test in March 2006 came out at a 40 - very low, while I was have a Lyme incident of some type, before any oral antibiotics.

My LLMD explained that neurotoxins can cause symptoms as dramatic as those of Lyme. I am going to begin a supplement to detox. I had my first ORGANIC coffee enema tonight. It felt like some of this sludge has moved. I have more enrgy and feel relaxed right now...the edgy anxiety has left for a little while.

I am adding Tinidazole as the cyst buster tomorrow. We will see if the plateau breaks.

Just herxing today....lower back, tailbone and back of neck up to the base of my skull. Maybe I overdid it this weekend. Maybe the Engystol. I would like to continue to detox. but how much is too much?

I have begun my fourth month of IV Rocephin. I am still herxing. Nightsweats last night. Stiffness and numbness in my right hand. My tailbone is extra sore as is my left big toe.

My period has taken on a new cycle - 23 days. Hmmmm. My doctor has told me to lay off the Engystol and Pleo remedies in order to minimize the Herxing. I see him next week. I am wondering about the cyst buster...I am Herxing on this detoxing protocol. I cannot imagine what the cyst busters will do!

My neck is stiff and my right hand is stiff and numb and my left big toe is sore.